I am the principle investigator for an interdisciplinary research study funded by the MS Society aiming to explore how people recently diagnosed with MS make decisions about what treatment to choose and why. It is hoped that by gaining a better understanding of treatment decision-making processes, health care professionals will be better able to support individuals to make choices which are line with their personal and social needs.
Since the start of the project significant developments have taken place: we have appointed Dr Ieva Eskyte to work as a qualitative research fellow in the study; and we have completed a literature review of studies reporting on key areas important to people with MS when making decisions about suitable treatments. We have also completed four focus groups with people with MS, consultant neurologists and MS specialist nurses.
The second phase of our study has just started and we are currently conducting qualitative interviews with people with relapsing remitting MS to discuss their treatment choices and the circumstances in which they took place. The project website is now up and running at www.crimson.leeds.ac.uk. You can keep up to date with developments on the project via our Twitter account @2016_Crimson
More information about this project can be found on MS Society website (https://www.mssociety.org.uk/evaluating-pros-cons-dmts).